Monday, January 13, 2014

The Marathon

    Somewhere between my first world problems; unpacking a new house, choosing paint colors and recovering from the holidays, I've neglected the blog.  The good news is we have picked paint colors, bad news is we have yet to start painting.  Baby steps...
    Evey has her first spinal rod lengthening surgery in a month.  I'm actually a little nervous about this surgery, for the first time, probably ever.  Now that we know she has brittle bones and low bone density and she broke a rib the first spinal rod placement surgery, I'm nervous that as they're lengthening the rods, some more ribs will break, or worse her pelvic bone, or worse other stuff.  For now, there's nothing I can do, but take care of home and kids for a month and keep on keeping on.
     Evey's life constantly reminds me that this mortality is a marathon, not a sprint.  I have no idea what her future holds, I don't have a clue how long she'll be with us, and there's nothing I can do about that.  All I can do is take it one step at a time, tackle one issue at a time, and be the best Mama and wife that I can be to the other 4 amazing people in my life.  Isn't that the beauty of it all, that sometimes we just have to endure the best we possibly can in some really yucky "mortal" situations and trust that the Lord's plans are perfect for us.  Hence the saying, "Faith in every footstep", and believe me, there are a lot of baby footsteps in our marathon life.  I'm grateful that some days the Lord allows us to feel like life is a sprint and I'm grateful on other days we have to endure the marathon - to help us remember how good the sprint days feel.  I'm also learning on the marathon days, there's an extra responsibility on my shoulders to make sure that I ask my Heavenly Father incessantly to help me, because I simply cannot do it without Him.   For now, we are baby stepping, faithfully, to the ultimate end goal - being reunited with our loving Heavenly Father.  

Wednesday, January 1, 2014

Message from Rwanda

     A couple days ago, I had the perfect reflection moment for 2014.  One of the coolest guys we know happens to be Evey's wheelchair technician.  Their job is essentially to customize the wheelchair and measure Evey to make sure it fits her to a tee.  Our wheelchair guy is so cool, that he tricked out her wheels and put on some mountain tires and also customized her foot pad with some cool material that will be good sensory stimulation for pressure on her feet.  He is always so happy and has a wicked sense of humor.  Like I said, he's awesome!        
     He is from Rwanda and whenever Nate and I meet people not from Utah, in Utah, we ask them how they like it here.  He said this to us, "I like it here.  The thing is, you just have to be happy wherever you are."  So we asked how long he has been here and he said he left about 20 years ago.  We quickly put together that was the time of the genocide in Rwanda.  And then his comment made perfect sense, you can be happy wherever you are no matter what life circumstances are.  Especially coming from one of the happiest people I've ever met - who left his country in the middle of a genocide.  So that is my theme for 2014 - be happy wherever you are.  Thank you dear friend from Rwanda, for not only making Evey the coolest customized wheelchair, but for also giving us a pearl of wisdom, that will never be forgotten.  Here's to a happy 2014! We are blessed.